Cerebral Palsy & Blindness (Stacey Braun)

Visual impairments can result from problems with any part of the visual system, including the eyes, eye muscles, optic nerve or areas of the cerebral cortex that process visual information (Book et. al). Because cerebral palsy frequently affects the visual system, children with CP are more likely to have visual problems than are other children. In fact, according to a study conducted by Black, "up to 75% of children with CP are impaired".

One such of these specific impairments is labelled cortical visual impairment. Cortical  visual impairment or CVI results from injury to the brain's visual centres on the cerebral cortex (Book et. al). A child with CVI is thus able to pick up visual information with their eyes but the child's brain cannot process and interpret the information correctly. It is analogous to an imperfect computer chip which cannot fully process the input from the keyboard.

Generally speaking, the most common CVI symptoms presenting in children include an abnormal light responses, inconsistent visual responses to the same stimuli, and decreased responses to visual stimuli when auditory stimulation is present (Giord et. al). But the loss of vision does not only exhibit itself in symptoms directly related to the field.

When a child is blind they have lost one of their basic senses - they are under stimulated. Many of these children resort to other behaviours and forms of self stimulation to compensate for this under stimulation. These behaviours can include head banging, poking, rocking or staring at sources of light (Edelson). It has been reasoned that the head banging may even provide a form of pleasure related to movement titled kinaesthetic drive.

Though these behaviours can be a negative influence in many spheres, developmentally these behaviours are important for blind children as connections are made in the brain where the body is (Coots).

In fact, in the past two months I have witnessed the importance and predominance of these behaviors. In specific, one CVI-blind child at Hope Home fully engages in these actions, though there are two additional CVI children at the home.

However, though these children may seem lost in their world of behaviors that are difficult to comprehend - these children have NOT lost all of their senses: they still have viable feelings remaining. Most importantly, these remaining sensations need to be exercised to promote development. Presently, at Hope Home the developmental pursuits revolve around two core senses: sound and touch.

Stimulating the sense of sound is one experience that is constantly integrated into these children's lives. A variety of genres of music are being incessantly played on the stereo or sung. In addition, at times the children actively engage in creating their own music using instruments such as tambourines, bells, and drums. Therefore, not only to they to revel in the therapeutic auditory sensation but they also get to experience the tactile stimulation associated with banging ones hand against the firm surface of the percussion instrument.

Similar to the sense of sound, the sense of touch is almost effortlessly innervated into each of the three children's our times. In conjunction with the unintentional "touch" lessons, such as putting on clothes and feeding, toys such as a ball-pits and sensory boards provide opportunities to optimize each of these children's development.

Overall, though their condition has robbed their sight from them like a thief in the night - not all is lost. And this can be no more clearly than in this smile below.